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Help! Retinitis pigmentosa

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Nepročitano 17-08-09, 08:49   #1
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Zadani Help! Retinitis pigmentosa

Dobila sam ovaj upit na e-mail. Ako netko zna odgovor, molim za pomoć.

"Zanima me da li se mogu liječiti određene očne bolesti / retinits pigmentosa/, negdje sam pročitala da postoji liječilište u Španjolskoj te da se tamo uspješno liječi akupunkturom

ili ako se mogu barem ublažiti simptomi(treperenje pred očima 12 god, magla i crvena boja koje su pred očima)

Molim vas da odgovorite
"

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Nepročitano 17-08-09, 08:59   #2
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Zadani Što je retinitis pigmentosa?

Retinitis pigmentosa, ili RP, je genetičko očno oboljenje. Retinitis pigmentosa je noćno sljepilo koje vodi na tunelski vid tokom godina. Mnogi oboljeli ne postanu "legalno" sljepi do 40-tih ili 50-tih godina i pretežno ostanu sa veoma malo vida. Totalno slijepilo se ponekad javlja ako je oboljeli u ranim godinama djetinjstva. Progresija bolesti je različita od čovjeka do čovjeka.

RP uzlazi u kategoriju nasljednih bolesti u kojem fotoreceptori (rods i kone) ili retinski pigment epithelium (RPE) vodi veoma malom vidu i vremenom slijepilu. Oboljeli prvo imaju probleme sa prelazom u mrak ili noćno sljepilo koje vodi u skraćenje perifelnog vida, i tokom vremena totalnom slijepilu. Najbolje rečeno kroz frazu: "Kao da gledate svijet kroz slamku".

Dijagnoza

Dijagnoza Retinitis pigmentose je dugoročna. Za dijagnozu je vazan ERG, elektroretinogram, kojim se snimaju elektricne akrtivnosti receptorskih stanica retine. Doktori moraju da imaju dokumentaciju gubljenje vida u fotoreceptor funkciji. Vrsta nasljeđa je odlučeno kroz porodičnu historiju. Najmanje 35 različitih genova stvaraju "nonsyndromic" RP. DNK testiranje može se izvršiti u klinikama za: RLBP1 (autosomal recessive, Bothnia vrsta RP), RP1 (autosomal dominant, RP1), RHO (autosomal dominant, RP4), RDS (autosomal dominant, RP7), PRPF8 (autosomal dominant, RP13), PRPF3 (autosomal dominant, RP18), CRB1 (autosomal recessive, RP12), ABCA4 (autosomal recessive, RP19) i RPE65 (autosomal recessive, RP20). Za sve ostale gene, molekularno testiranje postoji u početnim fazama.

Genetika

Mutacija Rhodopsina, gen koji esencijalan za vizualnu sliku, je otkriven1989. godine. Danas, preko 100 mutacija ovog gene su otkriveni koje stvaraju razne vrste retinskog oboljenja. Većina mutacija su nasljeđena kroz dominantni genetički način.

Tretman

Trenutno klasična medicina nema nijedan tretman niti lijek za Retinitis Pigmentosu. Naučnici i dalje pokušavaju da nađu moguće tretmane. Budući tretmani mogu da budu: retinska transplatcija, vještačke implantacija retine, genetička terapija ili lijekovi.


Normalni vid bez RP-e


Vid sa Retinitis Pigmentosom (tunelski vid)

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Nepročitano 17-08-09, 09:33   #3
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Pošalji mi mail osobe na PM, ako želi.


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Nepročitano 17-08-09, 15:11   #4
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Akupunktura bi mogla puno toga napraviti,popraviti stanje,.Preporucam ti da preneses doticnoj osobi da dobro pogleda oko strucnog akupunkturista.
I svakako pronaci Reikista koji ce znati kako energetski podrzati,i terapirati.
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Nepročitano 17-08-09, 21:44   #5
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Zadani

Citat:
Originally Posted by Acarya Pogledaj Post
Akupunktura bi mogla puno toga napraviti,popraviti stanje,.Preporucam ti da preneses doticnoj osobi da dobro pogleda oko strucnog akupunkturista.
I svakako pronaci Reikista koji ce znati kako energetski podrzati,i terapirati.

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Nepročitano 17-08-09, 21:50   #6
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Zadani

Citat:
Originally Posted by Blue_Knight Pogledaj Post
Ovo je zanimljivo.
Pošalji mi mail osobe na PM, ako želi.
Hvala, Blue! Pitat ću tu osobu, da li ti smijem dati njezin e-mail.

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Nepročitano 19-08-09, 22:40   #7
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Zadani

Citat:
Originally Posted by Blue_Knight Pogledaj Post
Ovo je zanimljivo.
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Poslala sam ti njezinu e-mail adresu preko PM. Hvala!

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Nepročitano 19-08-09, 23:26   #8
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Nepročitano 20-08-09, 14:56   #9
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Zadani

Citat:
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Hvala tebi! Sad cu joj odmah poslati mail.

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